An Even Better Day With the Pediatric Orthopedic Surgeon

As great as the day was with the craniofacial specialist, the subsequent appointment with the pediatric orthopedic surgeon was even better.  He doesn't believe that the boys have a non-progressive or a slowly progressive condition.  He thinks they are getting better, specifically getting stronger.  He brought in residents , a med student and the boys clinic physical therapist.  I'm used to that at this point.  I know how valuable my boys are to professionals' education.  This was a bit different.  The surgeon took the opportunity to explain to them why their condition is not muscular dystrophy.  He explained the clinical presentation ruled that out.  The manner in which they exhibit the Gower sign and the muscular expression of their upper chest and scapular area are not commiserate with a dystrophy.  He then said that they will not require surgery or treatment.  He said that we have plenty of doctors on the team, and that he's going to back off because we don't need him.  He's one of the doctors that I was certain we would need.  I'm so relieved that this will be unnecessary.  We will still have access to him, if their condition changes in the future.  It's the best possible outcome of that appointment.  While they still have some disorder, it's likely not fatal.  He made a point of educating the residents on how the clinical presentation demonstrating that the boys are improving.  It's wonderful.