Today my youngest son saw his craniofacial surgeon. We have great news; he may not need treatment after all, neither surgery nor orthodontia. I was so worried that we would have to do surgery soon, before we had more information or a diagnosis from the neuromuscular specialist. Now we don't have to worry about those complications at all. We don't have to worry about the risks of surgery for his unspecified condition. I also have the support from this doctor for when we do have a diagnosis for being either aggressive or not, as appropriate to the family and the condition. The best part is that we don't have to go back for three years, and effectively remove him from the active team.
I began the day with some anxiety as to what this assessment might mean. I'd been concerned that following him over six months instead of a year would mean that the progression is quickly moving toward serious complications. Instead, I'm able to end the day with a smile and time for my work.
As we move away from this medical model, it feels wonderful to do so because one of the doctors doesn't believe he's necessary right now - from a medical point of view. He's not responding to my stress and anxiety. It's appropriate to the child's plan of care. He doesn't need surgery. For that, any mother would be happy.
No comments:
Post a Comment