At yet another meeting of a new professional for my eldest son, I was asked about his medical story from birth. I tell this story again and again. There is so much; it is so valuable to so many. I can see that having our story in one location for them to read would save me so much time. I could update it as we go. While this is more for me and an anonymous form, I do need for us a way not to take up so much time each time we add in a new professional. I don't know how we will begin this, whether it could be a caring bridge site or something similar. Somewhere that I could give specific details, and would be password protected or even more secure would be an improvement. Our story is only going to get longer and more involved. At this point, the specialists may expand to beyond our local circle and become regional, national or international. Going over it again and again is emotionally draining and mentally stressful. It would be good to get it down once and pass out a way to access the information. Then, I could post here my story in a different perspective for a different audience. Not exactly repeating myself, but revisiting my story from different needs of my own.
I'll have to think on how to accomplish this. When I would have time to write this way is anybody's guess. If it helps, then I'll figure it out.
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