At long last, I met my own neuromuscular specialist. The appointment was everything I needed it to be. I received the validation that I've required for years. Myopathy is not in my head; I am symptomatic. However, I have been doing everything right. I have managed my own condition exactly as she would have recommended. Therefore, I'm doing far better than my clinical exam would suggest. I'm functioning highly for my level of affection.
Walking through the door of the ALS/MDA clinic for the first time is a surreal experience. No one could miss the drawing of Lou Gehrig at the front door. That clinic isn't any ordinary clinic. It's not just another specialty. Most patients there are facing a far different prognosis that I am. I consider myself so very lucky. Indeed, every patient there is so very lucky. How could it be any other way?
