At long last, I met my own neuromuscular specialist. The appointment was everything I needed it to be. I received the validation that I've required for years. Myopathy is not in my head; I am symptomatic. However, I have been doing everything right. I have managed my own condition exactly as she would have recommended. Therefore, I'm doing far better than my clinical exam would suggest. I'm functioning highly for my level of affection.
Walking through the door of the ALS/MDA clinic for the first time is a surreal experience. No one could miss the drawing of Lou Gehrig at the front door. That clinic isn't any ordinary clinic. It's not just another specialty. Most patients there are facing a far different prognosis that I am. I consider myself so very lucky. Indeed, every patient there is so very lucky. How could it be any other way?
Monday, April 7, 2014
Monday, January 6, 2014
A New Year, With Knowledge
This will be the first year that I have understanding about my body. I have always had questions, but would sometimes blame myself. I never had compassion for what I've experienced. Instead of believing that if I just worked out hard enough that I could be average, I now have gratitude for how much I have done. Four years ago on New Year's Day, I went running at 18 weeks pregnant. With the knowledge I have now, I know how much I have surpassed expectations. I won't enter this year with ignorance about what I can do with and for my body. I enter it with a deeper happiness and acceptance for my body than I've ever had.
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